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| Project HappyChild has 14 areas | 01 | 02 | 03 | 04 | 05 | 06 | 07 | 08 | 09 | 10 | 11 | 12 | 13 | 14 | click any area to access |
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AREA 8: SYNDROMES LINKS where to find help for kids |
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| Abandoned Children | SOS Children's Villages |
| Adventure Playgrounds | PlayLink |
| Advice and Support | Family Service Units |
| Advisory Services | National Association for Maternal & Child Development Limited |
| Alcohol misuse | Addaction |
| Allergies, ADHD and food sensitivity ... [plus the Feingold Diet, Failsafe Diet, Asthma,Yeast, Ritalin, Hyperactivity, and Diet Control] ... | "Treating ADHD with Diet" - read this amazing - and uplifting - saga from a parent who worked steadily through all the options to find ways of liberating a child from the restrictions of ADHD ..... |
| Aquatic Sports & Recreation Equipment | see Assistive Technology |
| Assistive Technology
"You can search the ABLEDATA database which contains information on more than 25,000 assistive technology products (17,000 of which are currently available), from white canes to voice output programs. ABLEDATA is a federally funded project [USA] whose primary mission is to provide information on assistive technology and rehabilitation equipment". |
ABLEDATA - publications & fact sheets
"ABLEDATA does not produce, distribute or sell any of the products listed on the database, but does provide you with information on how to contact manufacturers or distributors of these products." [Mike Andrews] Our thanks to Mike Andrews at Pathways Development Group for notification of this valuable resource. |
| Asthma | Asthma UK |
| Autism | Autism London |
| Attention Deficit / Hyperactivity Disorder | LD OnLine [Washington DC] - inter-active guide to learning disabilities for parents, teachers and children |
| Attention Deficit / Hyperactivity Disorder | see also "Treating ADHD with Diet", referenced above |
| Baby life support systems | BLISS |
| Bereavement (sudden) and Traumatic Stress |
The Los Angeles Center for traumatic stress and sudden bereavement is a non-profit community organization that helps children and adolescents in South-Central Los Angeles - its aims also include the prevention of associated substance-related disorders and major depression |
| Blindness | The National Blind Children's Society The Royal London Society for the Blind Iris Fund Infant Vision Project Helen Keller Worldwide |
| Blindness - archive of talking Linux software for the blind |
http://leb.net/pub/blinux/ "Blind users should know that talking Linux works, and for some, it is an ideal programming environment" - Karl Dahlke |
| Boarding scholarships for orphan children | Royal Wolverhampton School |
| Braille writers | Please see Assistive Technology (above) |
| Brain-injured children | BIBIC - the British Institute for Brain-Injured Children |
| Brain-injured children [international parents' network] Over the past 9 years the Foundation has developed a unique information unit. The archives, originally sourced as research materials, or in response to external enquiries, now serve as a comprehensive collection of information about all aspects of brain injury and related matters. |
Cerebra - Foundation for the brain injured child "Our resources are freely available to parents and families of brain injured children, professionals working in the field, or in fact anyone with an interest in the subject. Our library holds approximately 3000 titles, about half of which are available for postal lending. We also subscribe to a number of Journals and hold back-issues to many of the important titles focusing on paediatric neurology, and we can supply photocopied extracts from the reference section for personal study." |
| Cerebral Palsy | SCOPE ; The Bobath Centre; see also Conductive Education Resource Site, below |
| Child Slavery | Anti-Slavery |
| Child Health | The Royal College of Paediatrics & Child Health |
| Child Protection | NSPCC ; BASPCAN |
| Child Care | National Association for Maternal & Child Development Limited |
| Child Cruelty | NSPCC |
| Child Poverty | Child Poverty Action Group (help for advisors, not directly for children) |
| Childbirth | National Childbirth Trust WellBeing |
| Children in Hospital | Action for Sick Children ; POD |
| Children with cancer | Children in Crisis (Poland, Belarus) |
| Christmas Gifts (war-torn countries) | Operation Christmas Child |
| Chron's Disease | Chron's in Childhood Research Association |
| Cleft Lip & Cleft Palate Resource Site |
Wide Smiles |
| Conductive Education Resource Site |
The Conductive Education Website - links to conductive education resources on the Internet in many countries as well as huge range of resources including newspaper articles etc. |
| Community Services | Family Welfare Association |
| COT DEATH
[NZ site but has outlets in England, Scotland, the USA and Canada (all addresses/tel.nos. on the site)]. Julee Oakley (UK contact) wrote to us: "It is vital the public obtain Dr Sprott's guidelines to ensure correct type polythene is obtained for the purpose of cot death protection and that the mattress is wrapped correctly and securely to his specifications. We are happy to send this information free of charge - (stamped) sae appreciated where possible." |
Visit the extraordinary website COT LIFE 2000 - established by Dr. Jim Sprott - T J Sprott OBE, MSc PhD FNZIC, Consulting Chemist and Forensic Scientist who campaigns actively for the endorsement of mattress-wrapping and associated measures for cot death prevention - "Mattress-wrapping for cot death prevention, which has been publicised in New Zealand for over four years, has had a 100% success rate ... there has been no reported cot death among the tens of thousands of babies who have slept on mattresses wrapped to the Cot Life 2000 specifications." [see also the Article on line at Project HappyChild] |
| Country Holidays | The Children's Country Holidays Fund |
| Curative Eurythmy | Camphill - Rudolf Steiner Schools |
| Cystic Fibrosis | Cystic Fibrosis Trust |
| Deafblind | SENSE |
| Deafness | National Deaf Children's Society ; Breakthrough Deaf/Hearing Integration; DeafWorldWeb [massive resource, worldwide, by country] |
| Deafness - Signing Dictionary (for communicating with deaf people) |
http://dww.deafworldweb.org/asl/ select from letters top left for list of words to choose from [scroll down top left frame for languages other than American and other options] |
| Deafness - special fund for children with hearing loss or difficulty (USA only) | The Travelers Protective Association of America - National Scholarship Program for the Deaf and Near Deaf - special fund established by TPA in order to assist children and others with hearing loss or difficulty. "TPA has provided hundreds of children with scholarships for education and special equipment" |
| Developing countries | UNICEF ; CAFOD |
| Disabilities - aids (massive resource) | Please see Assistive Technology (above) |
| Disabilities - customised mobility equipment |
Whizz-Kidz - providing equipment such as wheelchairs and tricycles that are not available through the National Health Service. |
| Disabilities - joints | The Lady Hoare Trust |
| Disabilities - limbs | The Lady Hoare Trust |
| Disabilities - arthritis | The Lady Hoare Trust |
| Disabilities | Contact a Family |
| Disabled children - custom-made chairs, air chairs, infant bathing chairs etc. | MERU - Medical Engineering Resource Unit - see the main FOCUS page on this website. |
| Disabled Children - play | HAPA - promoting play for disabled children |
| Disabled Children - sports facilities | Variety Village [Ontario, Canada], largest sports training and fitness complex in North America for youngsters with special needs |
| Disadvantaged children | Fairbridge (for ages 14 upwards)
- inner city areas UK only; RPS Rainer |
| Drug education | Addaction |
| Dyslexia | The Dyslexia Institute |
| Eczema | National Eczema Society |
| Education | Advisory Centre for Education |
| Educational Psychologists | Free advice by e-mail from qualified Educational Psychologists plus free-to-print strategies ("pre-prepared interventions") for teachers and parents dealing with special educational needs. A valuable and much-needed resource provided free by Tim Francis and colleagues. |
| Education settings | Human Scale Education |
| Emotionally-damaged children | Shaftesbury Homes & Arethusa |
| Entertainment for children in hospital | POD |
| Family Tracing | The Salvation Army |
| Foster Care | The Fostering Network |
| Gifted Children | NAGC |
| Growth problems | Child Growth Foundation |
| Handicapped children | Camphill - Rudolf Steiner Schools |
| Handicapped children - custom-made chairs, air chairs, infant bathing chairs etc. | MERU - Medical Engineering Resource Unit - see the main FOCUS page on this website. |
| Handicaps (profound) | The Children's Trust (Tadworth Court) |
| Handicapped Children - sports facilities | Variety Village [Ontario, Canada], largest sports training and fitness complex in North America for youngsters with special needs |
| Head Injuries (long term care) | The Children's Trust (Tadworth Court) |
| Holidays (children with learning disabilities) | BREAK |
| Homelessness | NCH Action for Children; The Salvation Army |
| Hostels | The Salvation Army |
| Hunger | See our main FOCUS page |
| Hydrocephalus | ASBAH |
| Hydrotherapy | Camphill - Rudolf Steiner Schools |
| Hyperactivity Disorder / ADD | LD OnLine [Washington DC] - inter-active guide to learning disabilities for parents, teachers and children |
| Hyperactivity / Attention Deficit Disorder | see also "Treating ADHD with Diet", referenced above |
| Jewish social services / child care | Norwood Ravenswood |
| Kids' Clubs | Kids' Clubs Network |
| Language difficulties | I*CAN |
| Learning difficulties | LD OnLine [Washington DC] - inter-active guide to learning disabilities for parents, teachers and children |
| Medicinal Baths | Camphill - Rudolf Steiner Schools |
| Meningitis | Meningitis Research Foundation - Freefone 24 Hour Helpline (UK) - 080 8800 3344 |
| Metabolic Diseases | Climb |
| Multiple Births | Twins & Multiple Births Association |
| Onchocerciasis | Helen Keller Worldwide |
| One Parent Families | One Parent Families Scotland ; National Council for One-Parent Families |
| Orphanage Children | The European Children's Trust ; Samaritan's Purse (Operation Christmas Child) |
| Orphaned Children | SOS Children's Villages |
| Parent Accommodation (where children are away from home in hospital) | The Sick Children's Trust; The Daniels Charitable Trust |
| Pathological Demand Avoidance Syndrome (PDA) |
PDA Support Group with a wealth of related information, including comparisons of PDA children with Autistic/Asperger children, diagnostic criteria, and guidelines for handling at school and at home. |
| Physically-handicapped children - custom-made chairs, air chairs, infant bathing chairs etc. | MERU - Medical Engineering Resource Unit - see the main FOCUS page on this website. |
| Physiotherapy | Camphill - Rudolf Steiner Schools |
| Powered Wheelchairs | Please see Assistive Technology (above) |
| Pre-school | The Pre-School Learning Alliance (including special needs support) |
| Profound handicaps | The Children's Trust (Tadworth Court) |
| Rare diseases | Gt. Ormond Street Children's Hospital |
| Rare Diseases Clinical Research Network | See press release November 2003 and also the National Centre for Research Resources page. |
| Rare Syndromes - Support Groups Directory | Contact A Family On-Line Directory of Specific Conditions and Rare Disorders |
| Rare diseases database | National Organization for Rare Disorders (USA) - includes massive list of support groups also - both lists arranged alphabetically. |
| "Links pertaining to Congenital, Hereditary, and Neonatal Diseases and Abnormalities" [includes rare conditions] | Karolinska Institutet, Sweden [global list of web links] - vast list of societies and support groups worldwide - nb see their caveat about checking info with your professional health provider. |
| Refugee children | Ockenden International; Save The Children Fund |
| Residential homes (teenagers) | Shaftesbury Homes & Arethusa |
| Respite care (children with learning difficulties) | BREAK |
| Reye's Syndrome | National Reye's Syndrome Foundation of the UK |
| Riding | The Elizabeth Svendsen Trust ; Camphill - Rudolf Steiner Schools |
| Rubella | SENSE |
| Soup Runs | The Salvation Army |
| Special care unit support | BLISS |
| Special Educational Needs (SEN) | Free advice by e-mail from qualified Educational Psychologists plus free-to-print strategies ("pre-prepared interventions") for teachers and parents dealing with special educational needs. A valuable and much-needed resource provided free by Tim Francis and colleagues. |
| Special Needs childcare support | Aberlour Trust (Scotland) |
| Special Needs - respite care | Family Link Directory (UK) |
| Special Needs - camps for active children | Forest School Camps - an educational charity, all officers and staff being unpaid volunteers - run some camps suitable for active children with special needs due to learning difficulties or physical disabilities. See their Special Needs page. |
| Special Needs - Inventions helping disabled children | See our main FOCUS page and the Special Needs area of the Project HappyChild Shop |
| Special Needs - residential | Camphill - Rudolf Steiner Schools |
| Special Needs - sports facilities | Variety Village [Ontario, Canada], largest sports training and fitness complex in North America for youngsters with special needs |
| Special Needs - support | Contact-A-Family KIDS |
| Special Needs - toys | National Association of Toy & Leisure Libraries - Publications page |
| Speech difficulties | I*CAN |
| Spina bifida | ASBAH |
| Sports & Recreational Equipment | Please see Assistive Technology (above) |
| Sports facilities - special needs | see "Variety Village" as above |
| Stammering | The Michael Palin Centre for Stammering Children |
| Stepfamilies | National Stepfamily Association |
| Street work | The Children's Society; The Salvation Army ; Betesda (Romania); SOS Children's Villages |
| Terminal illness care | The Children's Trust (Tadworth Court) |
| Third World Children | PLAN International; Save The Children Fund |
| Toy Libraries | National Association of Toy & Leisure Libraries |
| Toy Libraries (International) | International Toy Library Association [click on "links" at top, then "worldwide toy libraries" on drop-down text] |
| Trachoma | Helen Keller Worldwide |
| Twins | Twins & Multiple Births Association |
| War children | Children in Crisis ; LifeLine Network International (Sierra Leone, Africa); SOS Children's Villages |
| Wheelchairs | Please see Assistive Technology (above) |
| Wishes for ill children | Starlight Foundation |
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| This is the Index page for Syndromes Links -
http://www.happychild.org.uk/syndromes/index.htm located in Area 8 at Project HappyChild - linking children all across the world
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